For three years Mike Cornelius had run a daily race from home to his full-time job and back again so he could to take over from his wife Carol’s caregiver, but on April 8, 2014, he got a letter from Carol’s Medicaid HMO saying that it was reducing her care from 45 hours a week to 33, turning his exhausting routine into an impossible feat.
“Even before the decrease in hours, I was running absolutely crazy,” said Mike, whose life had been upended in June 2010 when, on the last day of school, his 12-year-old son Myles came home from the park in his quiet Tampa neighborhood to find his mother unconscious on the floor.
Carol Cornelius had two brain surgeries in the next 12 hours and spent two weeks in intensive care. She finally made it home by Thanksgiving, but the Carol who came home was not the one who’d fixed an after-school snack for Myles and sent him off to the park five months earlier.
Carol, now 60, has to have an alarm on her bed and chair in case she tries to stand up and walk, as she doesn’t understand she is paralyzed on the right side. She tries to have a conversation with a visitor, “but she can’t,” said Myles, who since the age of 13 has been providing, along with Mike, the more than 120 hours a week of his mother’s care the Medicaid HMO doesn’t cover.
“He’s given more care to his mother than his mother has ever given him,” Mike said.
In fact, it was based on “what you and your family are able to do” that the HMO said it was cutting Carol’s hours. In an appeal hearing, the HMO testified that it was not responsible for providing care for the “convenience” of a family member so that he could work, or look for work. The appeal was denied.
“Frankly, I was met with a stone wall,” Mike said. “I thought I had hope but in the end there was none.”
He turned to a private attorney, who referred him to Florida Legal Services Inc. (FLS) in January 2015. FLS reviewed other long-term-care hearings and found similar outcomes.
“When we looked back at hearing cases for long-term care, it was shocking the facts we saw,” FLS staff attorney Cindy Huddleston said. “Their appeals were being denied.”
FLS, whose funding comes primarily from The Florida Bar Foundation, filed a brief with the Second District Court of Appeal challenging the legality of equating a family member’s employment with “convenience” and of the Agency for Health Care Administration (AHCA) allowing contracted Medicaid HMOs to set such policies, which are supposed to be under the purview of the agency itself.
Beyond helping the Cornelius family, Huddleston and fellow FLS attorneys Kathy Grunewald and Anne Swerlick wanted to set a nationwide precedent to force state agencies to take responsibility for unlawful actions and policy pronouncements of HMOs participating in Medicaid Waiver programs, which are designed to allow the elderly and disabled to live at home instead of in an institution by providing cost-effective services.
“It’s cheaper to care for folks at home instead of putting them in a nursing home, so it just makes financial sense for the state to do that,” Huddleston said. “So it’s a win-win all around, but the HMOs have to realize that they can’t save money on the folks who need to be getting those services.”
Olga Bzdyk, an 82-year-old widow with end-stage Alzheimer’s, was another such person.
Her daughter, Karen, had taken care of her at her Miami home for six years while working 60 hours a week, but Karen reached her breaking point after herniating two discs trying to lift her mother and running out of money for in-home care when she couldn’t be at home.
The same Medicaid HMO that had cut Carol Cornelius’ hours capped Olga Bzdyk’s at 58 hours a week, which was not enough to allow Karen to maintain her job, much less go to the grocery store or pharmacy or conduct the routine errands necessary to take care of herself or her mother.
In Bzdyk’s case, FLS not only represented her before the Third District Court of Appeal, but it also filed a Petition to Initiate Rulemaking, formally asking AHCA to adopt a rule that prohibits HMOs from denying services based on a family member’s job.
In November 2015, AHCA issued financial sanctions against the HMO over its handling of the Bzdyk case and announced its renunciation of HMO policies that base medical necessity on the work schedule of an enrollee’s family member.
“We were very pleased when they reacted to the petition for rulemaking,” Huddleston said. “They’ve proposed a rule that clearly states that a caregiver’s work schedule can’t be the reason for denial of long-term-care services.”
For their work, the FLS attorneys received first place in The Florida Bar Foundation’s Steven M. Goldstein Award for Excellence, which recognizes a project of significant impact work undertaken by a grantee of its Legal Assistance for the Poor grant program. The award was presented at the Foundation’s 40th Annual Reception & Dinner June 16 in Orlando and comes with $25,000 for Florida Legal Services to use at its discretion, plus $3,000 earmarked for staff training.
“Florida is in the beaker of a national experiment requiring thousands to obtain life-essential long-term-care services through HMOs,” the attorneys wrote in their application for the award. “Although over 100,000 Floridians are enrolled in this experiment, Florida has not imposed adequate controls on the HMOs who deliver services and takes a hands-off approach to enforcing HMO contracts. In turn, HMOs push responsibility for services onto family members beyond the family’s capabilities. Advocates nationwide are looking to Florida for leadership on these issues.”
Huddleston said it’s important now to get the word out that AHCA has set the new policy. “There are a half million people just with Alzheimer’s in the state now,” she said.
Mike Cornelius is pleased to have been involved in a project that is helping others, but he admits that he went into the fight for his own family’s survival and to keep his wife out of a nursing home, where he feared she’d become catatonic.
“I think it’s the only right thing to do,” he said. “You take your wedding vows and you say, ‘in sickness and in health.’ I love my wife. What can I say?”Donate Now Read More Stories of Justice Make an Impact: Ways to Give